CF Week 24-30 June 2013
George Howarth MP met with representatives of the Cystic Fibrosis Trust and families affected by cystic fibrosis at an event at the House of Commons on Tuesday 25 June. The event aimed to raise awareness amongst MPs and other key decision-makers about important issues for people with cystic fibrosis and the transplantation process.
1 in 3 of those with cystic fibrosis who are on the transplant list will die waiting. Cystic fibrosis is a life-shortening genetic condition affecting 10,000 people in the UK. New treatments and better clinical care are helping people with cystic fibrosis to live longer but many will still reach a point where their only hope is a double lung transplant.
George Howarth, MP for Knowsley North and Sefton East said:
“I was delighted to attend this event and learn first hand some of the issues that affect my constituents living with cystic fibrosis. I was also able to learn about the work of the Cystic Fibrosis Trust and find out more about their open consultation looking at the issues affecting the number of lung transplants for people with cystic fibrosis.”
Ed Owen, Chief Executive for the Cystic Fibrosis Trust said:
“Too many people with cystic fibrosis are waiting for lungs that will never arrive and they will die on the waiting list. We are pleased that MPs are showing interest in this issue and we have launched a national consultation during CF Week to look at how transplantation rates can be improved for people with cystic fibrosis.”